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Your Flares And Their Duration

Your Flares And Their Duration

How long do your flares last?

1) How long was your longest flare?

2) How long was your shortest flare?

3) Is there an average length of time to your flares?

A MyLupusTeam Member said:

I am wondering if I am correctly calling my flares the right thing. I definitely feel them coming on. Swollen glands first. Mostly in my neck and arm pits. I can get very chilled and can't get warm, especially hands, nose and from halfway down my calf to my poor almost always frozen toes. I often have raw and red spots in my mouth. Like when you have eaten something too hot and burned it. Always dark red spots on my tongue and often canker sores too. That's before the exhaustion, confusion and pain in every joint hit. It will last anywhere from 24 hours to a week but typically 2 to 3 days and happens about every 2 weeks or so. Wintry weather or just big weather changes trigger my myofascial pain and I think that sets it off too. This time that I'm just getting over has been 3 days. This time there was a lot of nausea and lots of sweating once I got warm. Either sweating or freezing. Not much in between.
Do you suppose that things that v seem to cycle this fast are really flares? Does anyone else have this? I do notice it more after stress and there's lots of that around here.

posted over 4 years ago
A MyLupusTeam Member said:

@A MyLupusTeam Member, I'm so happy to hear from you! :-) I hope you feel increasingly better everyday. I'll say a prayer and do a rain dance for you! ;-)

I'm quite shocked at how long a flare can last. I didn't even realize it, but I'm in a flare (or do we say flaring?) right now. I'm so new to lupus and have so much to learn. During my research, I didn't get what they meant by a flare. I thought maybe I didn't get them because I am consistently tired in pain. The past month has been noticeably worse though, and there was absolutely no doubt about it yesterday. I was dreaming I was in terrible pain… then I woke up in terrible pain! I have never felt that bad in my life.

Someone here mentioned their worst flare was 5 months, and I was like WTF?!! Then I realized in my research they never mentioned how long a flare could be. I know, everything is different for everyone so there's no direct answer for anything. So frustrating!

posted over 4 years ago
A MyLupusTeam Member said:

Yes I feel extremely normal I can do all the things I did before I was diagnosed with this illness and the other illnesses I was diagnosed with there's no pain or fatigue at all when I was in remission @A MyLupusTeam Member

posted over 4 years ago
A MyLupusTeam Member said:

Having been ill with Lupus for 21 years, flares and remissions have changed according to age group and environment. For years I would say it is a good season or poor one, that changed to monthly changes, then good Weeks, bad weeks. 2014-15 it was good and bad days. Now, it is moments. My
Lupus Blood panel was great but Lupus caused Neuropathy had progressed and so I was ill despite what a blood test said! Really for us, it is moments, or hours. We take whatever we are blessed with that day and make the most of it! Best wishes in EVERY MOMENT!

posted over 4 years ago
A MyLupusTeam Member said:

1) my longest flare I'd have to say lasted for almost a year cause I was in the hospital for almost a year due my lupus flaring pretty badly every time I got discharged from the hospital I had to be readmitted either that month or the next month (I was in high school then)

2) my shortest flare would have to be the one that I had this year which lasted for about a month not to mention I had a pretty bad sinus, ear and bronchitis infection so that contributed to me flaring.

3) well honestly I hadn't had an issue with my lupus since I "graduated" from high school if that's what you want to call it lol which was in 2011 that is when my lupus went into remission i guess is the word so for 5 years I was in remission this year is when my nephrologist let me know that I was out of remission that my lupus was coming back worse which sucks seeing that I'm one of his most difficult patient to treat.

edited, originally posted over 4 years ago
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