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IVIG And Hypogammaglobulinemia
RI was diagnosed last week with hypogammaglobulinemia. I'm trying to figure it out. The only thing I know is what the nurse said and that's that I have it. I know they are in the process of trying to get the IVIG approved. Any information about treatment, supplements, diet and whatever helps you is greatly appreciated. And please share your first IV infusion experience. I'm just trying to find my way.
What's RI & hypogammaglobulinemia I'd genuinely like to know of course i will research it as well hope it doesn't weird you out but whenever anyone on my team or in general updates us on a new medication, new symptoms or a new diagnosis i always research cause i genuinely want to get a better understanding of what they're dealing with as well as what they have to go through the only IV transfusions I've ever had to experience in my life are iron transfusions ( it made my feet feel like they were on fire it burned so much i felt like i was being given potassium) and blood transfusion cause i had a really bad blood infection mum had to take me to the hospital everyday i was a baby so i don't remember any of this I'm just going by the information my nan told me, i hope you're doing well @A MyLupusTeam Member
Not sure what RI is but my son has to get IV infusions to treat his kidney disease and lupus. He feels weak for a few days, and he keeps getting shingles, but he does have any other side effects of the treatment.
He takes cytoxin.
What type of infusions does your son get? I have in the past received Benlysta infusions. Thanks for your input. @CrissaMichelleMilton
Has Anyone Had Hypogammaglobulinemia With Their Lupus?
Has Anyone Had Para Spinal Myosotis? Or Had An IVIg?
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