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A MyLupusTeam Member asked a question πŸ’­
Irving, TX

What has been your highest white blood cell count if you know it ??πŸ’œπŸ’œπŸ’œ

February 26, 2017
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A MyLupusTeam Member

I have been followed by an Onconoligist Hemotologist literally since the beginning in 94/95 when my Dermatologist did blood work due to extreme rash My white count came back 900
Of course he panicked the next day was July 4 I spent all day in ER with Dr's running all kinds of test poking priding I was scared to death my son was 22 months old at that time
Bone Marrow Biopsy showed (I've had many) my bone marrow is making white blood cells but they are being destroyed before they reach maturity There's really nothing they can do if you end up in ER or hafta see a different doctor that doesn't know your case and my count is 4/5 oh you fine...in normal range...
When in fact that's very elevated for me and a sign of infection or something?? I know we all get so frustrated
I know we will come out of this valley and stands on the mountain top and be Victorious in Jesus Name πŸ™Amen

February 27, 2017
A MyLupusTeam Member

It used to be that just my white cell count was low (lowest was 1 when I was VERY ill). I've been told the exact threshold for determining low white cell count depends on the lab your blood is sent too.Now my RED and WHITE cells are low. However my sed rate did get back down to normal so I was taken off the cel cept 3 years ago.Cel Cept caused the destruction of my white cell count causing weakness and nausea giving low white cell counts.

February 26, 2017
A MyLupusTeam Member

@A MyLupusTeam Member My body is making white blood cells in the bone marrow but white blood cells are being destroyed before they they reach maturity

March 28, 2017
A MyLupusTeam Member

@A MyLupusTeam Member I am so sorry you've been diagnosed with Cancer sometimes it feels like it just keeps coming Thay certainly will affect all your blood counts have you started treatment yet? I continue to lift you up and pray for healing in Jesus name and thanking him in advance for all his many blessings πŸ‘ΌπŸ’›πŸ‘ΌπŸ’œWARRIOR πŸ’œSTRONGπŸ’œ

February 27, 2017
A MyLupusTeam Member

Cont'd It still took 7 years for diagnosis!!
I guess they wanted to be really for sure?!?

February 27, 2017

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