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A MyLupusTeam Member asked a question 💭
Houghton-le-Spring

This is a two part question?.
I know everybody is different and are treated differently but on average, how long did it take to be diagnosed?
Did you all stick to the same doctor or different doctors?
Is there anywhere online I can get more information to help myself get more help towards a diagnosis? I live in the UK and it seems to take forever for doctors over here to diagnosis anybody.
Thank you all

February 28, 2017
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A MyLupusTeam Member

It took well over 3 Years for me to be diagnosed in USA. It wasn't until I had double Pulmonary embolism caused from Lupus anticoagulant that the doctors felt like calling it LUPUS. If they had put me on Lupus medication sooner I may not have had the double PE. But so goes it with the medical field and a Lupus diagnosis!

March 1, 2017
A MyLupusTeam Member

Thank you both @A MyLupusTeam Member and @A MyLupusTeam Member, I'm going to have to definitely go back to the doctors and see if they can get me in to a rheumatologist. Or find a doctor that will listen to everything as you say thank you for answering

March 1, 2017
A MyLupusTeam Member

@A MyLupusTeam Member thank you for your advise I will certainly look into what you have said, I've done the same with information I've found online aka taking it too doctors but they just dismiss me, they have said that because I don't have the butterfly rash that I don't qualify for SLE/Lupus, but the rest of the symptoms I do have, I was also told it could of been Hughes Syndrome but cause I haven't had multiple miscarriages they say I can't have that either, so just because I've been sensible and took precautions whilst having a sex life and all that time being on warfrin they just dismiss you. They also said I had sticky blood, I have B5 diffientiences (sorry I'm such a bad speller at times) it's like I've been knocking my head on a wall for years I've been like this now for 14years.

February 28, 2017

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