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A MyLupusTeam Member asked a question 💭
New York, NY

So I'm in week 2 of 20 mg. Then next week I take 10 (half a pill).

I should have asked my Rheumy why we have wean me off. I am feeling better though not 100 percent yet but much better.

Just curious about the weaning process off Presnidone. Never had that with a medication before. What was your post Presnidone experience like?
Thanks for any replies!

March 11, 2017
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Reactions
A MyLupusTeam Member

Baberens is correct! My dad was a pharmacist, too

March 12, 2017
A MyLupusTeam Member

Most meds you should be wrans of because of the effect it has on your body,you could end up by worse by just stop basically your body will go cold turkey an your feel worse,symptoms being sweating,hot and cold diarrhoea, and aching all over leaves you feeling like crap stay well x

March 12, 2017
A MyLupusTeam Member

It dangerous to just stop. Because of the chemical change in my body when they do it with me i can get angry quicker. But good luck its a positive step forward. X

March 12, 2017
A MyLupusTeam Member

Presidone always seems to help me when I am in pain. As I was weaning off of Presidone, I felt like I was hit by a mac10. Sore all over and felt like I had bruises everywhere.

March 11, 2017
A MyLupusTeam Member

My doctor tried to wean me off with no success. Increased to 40mg. Hate the side effects went back down to 20mg.

March 11, 2017

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