Connect with others who understand.

  •   Learn from expert-reviewed resources
  •   Real advice from people who’ve been there
  •   People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyLupusTeam Member asked a question 💭
Syracuse, NY
May 23, 2017
 · 
Reactions
A MyLupusTeam Member

Hello! Yes, many people don't care unless it's them but I care and we all care about your wellbeing even if we don't quite know one another. Rest as you need to. You don't owe anyone any explanations for how you feel. If they don't care to understand, than keep it moving. Take care of you. It's hard at times dealing with what we deal with on a daily basis. Sometimes your up and feel great and then you have days that you just want to stay in the bed and cry. We're all in this together. We will make it! Just hold on a bit longer. There's a cure in the making. Love ya!

May 25, 2017
A MyLupusTeam Member

First, Thank you so much for asking. People around us avoid asking because they don't want to hear if you hurt. I think it scares them. Today even answering this hurts and the weather here has been damp and cold. I hate Lupus is an understatement. I hope you are doing well.

May 24, 2017
A MyLupusTeam Member

Doing great! The last couple of days have been the best days since my diagnosis. I'm going to remain hopeful that the best is yet to come.

May 24, 2017
A MyLupusTeam Member

Doing great I woke up this morning and I'm blessed thank God for favor 2 see another day

May 23, 2017
A MyLupusTeam Member

Tired and mentally and emotionally zapped. People just don't seem to care unless it's them 😭☹️

May 25, 2017

Related Questions

View All
A MyLupusTeam Member asked a question 💭
San Antonio, TX

A MyLupusTeam Member asked a question 💭
Fort Worth, TX