I’m keeping my hopes up on being able to handle the cellcept. I’m really having a hard time figuring out that difference befween a flare up or the side effects of the medication I’m on they all just seem the same. I know I should see my rheumatologist for these things but I live on and island and he’s located on another one, but frequently comes to mine. And because we don’t have a rheumatologist here he’s always booked. My next appointment with him is in Jan. And my MD doesn’t really seem to help with my lupus question either, but trying to switch to a new one is hard here as well,

I’m also on 20mg prednisone 2x daily and 200mg hydroxychloroquine.

When I was first diagnosed, my doctor put me on cytoxan. It didn't work for me. Cellcept has worked wonders for me.

Sometimes you have to go with your feeling but you need to ask as well for re assurance on your health.

Hi, yes I had a flair I think with my gait walking issues right after taking cytoxican with high doses of Prednison while in the hospital my old Rheumatologist gave me for 2 weeks IV drip then after the hospital stay, my right leg swelled up. I midded my daughter's drive thru graduation.:(... and ended up banck in the ER again. But the ER sent me home three times before admitting me in the hospital two years with my kidney issues. Do not take Cytoxican IV. I asked the old Rheumatologist to put me on Myfortic pills after my Kidneys were stabalized a bit. But my old rheumatologist was not happy with my choice but I was. I am glad I left my old rheumatologist. Just ask about Myfortic if it is right for you. This all happened three yrs ago by the way. my Kidneys now are ok. On 5 mg Prednisone lowered it and on Myfortic today. ask.