I keep getting head spins and have noticed my memory seems to have just gone. I'll be asked to do something and 2 mins later, I've completely forgotten. Does anyone know if memory fog/loss is mainly during a flare up or does it come back?
It is worrisome because we look in the mirror and know we look the same but we are not the same. Most of us are type A personality and we want to stay that way and are not used to being overly fatigued to the point of ready to drop when we used to be a bundle of fluent energy and finish many to do lists in one day. Now I am fortunate to get a must do One Item done on the list. I have had this for a long time and I feel we are so fatigued we cannot even think straight much less feel like we can function. I still feel like I should be a type A personality mentally and also physically however this disease has taken over my body mentally and physically because the pain is so bad my battery is drained. The fog to me is because we are going through life being sleep deprived. I feel more tired when I get up than when I go to bed because I am not get restorative sleep at all. Sleep deprivation is a huge problem for most if not all of us. There is no pill to get restorative sleep or to make up for it. Do not beat yourself up over it. I make a lot of notes and have a dry erase board. I have a color coded calendar. I have to make notes and lists. My grocery list has the coupons with them. I find it takes a lot more time to do things because I can no longer multi task any more. I have to concentrate on one thing at a time. It is what it is. I do not like it but I cannot do anything about it. My lupus and other autoimmune diseases have gotten a lot worse over time. I have had time to accept the new me such as it is. I do not have to like it but I have to make it as doable as possible. Prayers and hugs to you. God bless. This site is my go to site as we are all here to help one another.No two of us are the same but a lot of us have a lot in common.
A flare is generally considered at action which is triggered by an outside source. Such as being out in the sun to long and getting a rash. The sun would be the trigger and the result is the flare. You can have a pain free day for 2 or 3 days and then be in pain the 4th day, this is usually referred to as a flare. Often, however, Lupus suffers are almost always suffering from continuous inflammation in one part of the body or another. A more accurate way to judge a flare would be blood work, if your ANA levels are medium high and then they show very high, this would be referred to as a flare. Once you learn to pay close attention to how you feel physically and mentally through repetition is when you will be able to judge when you are in a flare.
It is scary however this disease is a brain fog disease that does this to us. When this happens it means our brains are on overload. It means we are in a flare and we need lots of rest and sleep. We need to allow ourselves to be human. Everyone I know are a type A personality that are used to be able to doing so many things before this disease took hold of our bodies. Each one of us are different as to how it affects us. I have found not to find it but to rest my body so it will clear out the brain fog by getting lots of rest and sleep. When I am too tired it is hard to focus on anything. It is scary for sure but we are all here to help you and to give you our support and prayers as you navigate through the maze and find out how your body is and what it needs and what it can do at any given time and when you listen to your body and together you and your body find what is best for you. It is a different lifestyle but it is what is a new lifestyle which is not bad but is just different. For me it was hard to accept at first but once I learned to accept it, the better. I learned to pace myself which really helped a lot. I love the Lord and the book of Psalms is very comforting to me. This website is extremely helpful. Hugs and prayers. God bless.
To all the people who are worried it is just age:
I don’t think you are getting old. I believe this is lupus. Because I am only 21 and I forget stuff all the time. Just last night I couldn’t check into my hotel because I couldn’t remember my zip code. The same zip code I had my whole life. So I just stood there for a couple minutes frantically thinking until it finally came to me. It’s like it was there the whole time I just couldn’t actually grab it from my memory bank and say it. I forget my name sometimes when asked or can’t formulate the right answer or my sentence I was saying just trails off because I can’t remember my thought. Since other 21 year olds don’t experience this I just assume it’s all lupus related. Hope that gives you some encouragement... you are not getting old! :)
I am taking a health and nutrition class in college and learning how the body works. The body needs exercise to run. I suffer from lupus fog as well but I have learned you have to exercise to improve brain health. Regular exercise changes the brain to improve memory, thinking skills. I make sure I walk or do something every day. It has helped me so much with my fog.