Also, how do you identify when youre experiencing a flare/have gone into remission? I was recently diagnosed after having positive blood tests, though I have had symptoms for years. I think I may be experiencing a flare now because of my intense fatigue, joint pain, headaches, etc. My anxiety has also gotten to the point where I am involuntarily twitching, having hot flashes, and shaking constantly. I have my first rheumatologist appointment in a few weeks, but in the mean time does anyone have… read more
Are you sure its anxiety? There are so many unusual symptoms, those may be symptoms of Lupus. I was diagnosed with Lupus/Sjogrens last year and have been taking 200-400mg Plaquinil which really has helped!
I get a full body twitching sometimes before going to sleep. Also hot flashes, but more often cold chills, uneven body temp. And I get a type of trembling that many who have Lupus call internal trembling. My hands do not shake but I feel kind of shakey inside. I am not having anxiety when these things happen. But I can calm the symptoms down by doing something different, getting off the computer/TV screens, etc.
I have symptoms of CNS central nervous system Lupus. Another symptom that is very annoying is peripheral neuropathy, which for me is like a prickly skin feeling from head to toe. Everyone seems to have different symptoms! Hope you have a good visit with your rheumy!
Thank you for sharing poseymint, I don't have anxiety symptoms but I do suffer from some of the symptoms you explained and I need to mention them to my rheumatologist on my next visit. I have Lupus/Sjorgrens too and I am on Plaquinil 200 mg twice daily. I have been having twitching but never related it to the lupus, also I do get tremors if I am working on a project for any length of time, I have to walk away and give myself a rest although what I am doing relaxes me, I suppose to my muscles and joints, etc it must be tedious. I have also experienced the internal trembling and that can be worrisom, because you whole body internally is trembling and seems nothing can calm it. My body temperature also is uneven, I am either cold or hot rarely ever comfortable. Poseymint your post has been very imformative I love this site for this very reason of us affected being able to share and help each other.
Absolutely. I have these same symptoms. The twitchinf freaked me out so bad it even doubled my anxiety lol ! Theh even tested me for MS due to numbness and tingling. It sure takes the energy our of you when your anxiety is through the roof AND you’re in a flare. I’m still learning different tricks to calm mine myself, just wanted to tell you that you aren’t alone ! My prayers are with you❤️
Haaaly,
Each person experiences flares differently, and sometimes your flares can vary in symptoms each time you have a flare eventually you will learn your body and when something is off. But generally fatigue is poignant sign, and best advice I can give you when your body tells you to rest it is very important you listen and give your body rest! It really does make a huge difference!
More pain definitely causes more anxiety for me. Whether it's a migraine coming on or a different pain, sometimes I notice the anxiety before I notice that my pain is higher than usual.