During a flare, fatigue and pain can make everyday tasks harder. Lupus fatigue and brain fog can affect how much energy you have for work, errands, social plans, and self-care. Fatigue is one of the most common symptoms of lupus.

Several MyLupusTeam members described resting more than they expected and adjusting their plans to match how they feel.

One member shared, “Rest, rest, and rest. … Listen to your body, everyone is different. If something is known to affect you differently, then cut it.”

“Rest, rest, and rest. … Listen to your body, everyone is different. If something is known to affect you differently, then cut it.”

 

—  A MyLupusTeam member

Planning ahead can help, too. Some people spread out activities or build in recovery time before and after events. As one member explained, “I’ve had to learn to keep a calendar of everything going on. I try to space out my events and work, etc. I try not to accept invitations when the calendar starts looking crowded.”

Even with planning, flares can force last-minute changes. Canceling plans may bring up guilt, frustration, or even relief. Protecting your health is a valid reason to change your plans.

When symptoms are at their worst, many people focus on rest and low-effort activities that feel comforting. Several MyLupusTeam members described spending more time in bed, turning to calming activities, and prioritizing rest during flares.

One member shared, “I relax in bed and turn on a fun movie that I know will make me laugh.”

Comfort can also come from simple routines or everyday comforts. As one member wrote, “Some days, you will have to push yourself to do more but have rewards for yourself at the end of the day, like reading a good book, a cup of tea, and never underestimate the comfort of just putting on a new pillowcase that feels cool in this hot weather.”

For some, companionship matters, too. One member said, “I hold my little dog. … I feel better when I have a flare-up if he is close to me.”

These small, familiar habits may help create a sense of calm and control during a difficult time.

Have you tried calming or restful activities to help you feel better during lupus flares?

Lupus flares can have different triggers for different people, including infections, viral illnesses, exhaustion, too much time in the sun, and injury. Members also describe stress and weather changes as factors that may affect their symptoms.

As one member shared, “Sun and weather change is our worst enemy. Always wear sunscreen, long-sleeve shirts, umbrella, anything to protect you from sun.”Another member emphasized a similar approach: “Prevention is the best medicine. I stay out of the sun and rest when stressed.”

Because triggers vary, it can take time to recognize your own patterns. A simple record of your symptoms, activities, stress levels, sleep, and possible triggers may help you notice what happens before symptoms get worse.

Not every flare can be prevented. Still, paying attention to patterns may help you adjust your routine when symptoms worsen.

Have you tried identifying and monitoring your triggers to help reduce your risk of flares?

Some members say they experiment with diet and hydration to manage flares. These approaches can vary widely. The Lupus Foundation of America notes that there’s no single lupus diet, and foods that seem to trigger a flare can vary from person to person.

One member shared, “I avoid sugar. I notice I flare more when I eat sugary foods. I drink water, water, water! Really helps.”

Others take a more structured approach. “I follow the diet that eliminates foods that cause inflammation. I use the 80/20 percent plan. Eighty percent of my diet consists of only eating foods that do not cause inflammation,” another member explained.

“I avoid sugar. I notice I flare more when I eat sugary foods. I drink water, water, water! Really helps.”

 

— A MyLupusTeam member

It’s important to remember that what works for one person may not work for another. Members often describe dietary changes as a process of figuring out what works best for them.

If you’re thinking about making a major change in your diet, talk with a healthcare professional, especially if you have other health conditions or take prescription medicines. They can help you choose an approach that gives you the nutrients you need.

Have you tried changing what you eat to feel better during flares?

Living through lupus flares isn’t just physically challenging. It can also affect your mental and emotional health. Stress may worsen some lupus symptoms. Depression and anxiety are also common in people living with lupus. Oral corticosteroids (steroids) may be used to treat lupus, and side effects can include mood changes and depression.
Some people turn to faith or spiritual practices. One member shared, “I rely on my faith for every facet of my life. I follow doctors’ orders, take my medicine on time, and pray a lot.”

Others use journaling or reflection to cope. “Journaling. At night, before bed, I write down a minimum of three things I am blessed with or grateful for, and in the morning, before I get out of bed, I do the same,” another member said.

Support can also come from therapy, movement, or quiet personal time. As one member explained, “I go see a therapist for my depression, and I walk the track at my grandchildren's school, and that’s my therapy.” 

If stress, anxiety, or depression is becoming difficult to manage, consider talking with a healthcare professional. The Lupus Foundation of America recommends asking your healthcare team about stress management and mental health support when needed. MyLupusTeam members have also shared some of their favorite stress-relief tips.

Have you tried stress-management techniques, such as meditation or therapy, to better cope during lupus flares?