Your Answers: The Worst Lupus Advice (Infographic)

Posted on November 13, 2016

We asked and you answered! We posted this question: What bits of "advice" do you wish people would stop telling you? and hundreds of you took the time to respond.

What did we learn? From the unconcerned ("It's not so bad") to the plain unhelpful ("But you look fine"), advice is hurled at us from friends, family, coworkers, even strangers. While most suggestions are probably well-intentioned, hearing them over and over can make us feel that our condition is minimized and misunderstood.

Some of the most common answers we heard:

  • It’s not so bad
  • Try to exercise more
  • Why do you sleep so much?
  • Try not to think about
  • You should be used to it by now
  • Try to be more positive
  • Everyone gets tired sometimes...
  • You’re too young to be sick
  • But you look fine

Everyone's situation is different and not all of these apply to each person. Tell us: What advice about lupus do YOU wish people would stop telling you?

8 mini

A MyLupusTeam Member said:

Yeeesss all of this. I know people are trying to be helpful but when you walk in our shoes it is frustrating hearing the advice given when it makes no… read more

posted about 9 hours ago


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