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We asked and you answered! We posted this question: What bits of "advice" do you wish people would stop telling you? and hundreds of you took the time to respond.
What did we learn? From the unconcerned ("It's not so bad") to the plain unhelpful ("But you look fine"), advice is hurled at us from friends, family, coworkers, even strangers. While most suggestions are probably well-intentioned, hearing them over and over can make us feel that our condition is minimized and misunderstood.
Some of the most common answers we heard:
Everyone's situation is different and not all of these apply to each person. Tell us: What advice about lupus do YOU wish people would stop telling you?
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A MyLupusTeam Member said:
So tired of hearing my boyfriend say" Well you need to find a way for you not to sleep so much "
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