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A MyLupusTeam Member asked a question 💭
Australia

Erythromelalgia is a rare condition that primarily affects the feet and, less commonly, the hands (extremities). It is characterized by intense, burning pain of affected extremities, severe redness (erythema), and increased skin temperature that may be episodic or almost continuous in nature.
It has been known to come on because of Lupus and alongside of Raynauds. I'm just curious if anybody else gets this? It is horrible to deal with, but thankfully like most problems it comes and goes.

November 2, 2018
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Reactions
A MyLupusTeam Member

My feet hurt so bad sometimes I almost throw up from the pain. 8 months then I retire thank you God

October 23, 2019
A MyLupusTeam Member

Not a problem I always have thank goodness - I find circulation drugs help at the first sign of discomfort.

November 6, 2018
A MyLupusTeam Member

It will just burn for me and be red. . After a while - a few days to weeks - of being burning hot, they will turn purple or blue or black.

November 6, 2018
A MyLupusTeam Member

I've been to emergency a few times because my feet hurt so much I can't even stand it. . But I don't have the fallen arches or the lack of fat on my feet. Sounds just terrible!

November 6, 2018
A MyLupusTeam Member

my feet hurt really bad. they burn but dont get red. sometimes they burn and freeze at the same time. I do have raynaurds as well . My feet hurt from having no fat on the bottom of my feet so it feels like I am walking on pebbles or stones all the time. fallen arches. so I can not walk very far. Its just too painful. anyone have this and if so what do you do to help it.

November 6, 2018

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