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A MyLupusTeam Member asked a question 💭
Troy, MI

Officially diagnosed SLE. I've gained a ridiculous amount of weight in the past few years due to not being able to exercise (pain, no energy). My rheumatologist sent me to an endocrinologist, who says I should get weight loss surgery. My rheumatologist previously said she didn't think I needed it.

Has anybody experienced a positive effect on their lupus symptoms after weight loss surgery? I don't want to get the surgery if it's going to make things worse.

February 7, 2019
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A MyLupusTeam Member

I realized that diet pills, surgery ,all those things don't work we must realize that the disease is here to stay, we must learn to manage. We can cut and reduce the fat the tissue it's only temporary . We lose but we gain it back so I have accepted the reality of managing what we eat ,when we eat, watching our weight because we get comfortable and forget oops I am having a flare up. Which means taking all your meds and realizing " I put on weight well yes the prednisone and all the other meds we must take". Either we're gonna be healthy or cute it has gotten to the point , healthy is our main concern . So dress up and feel better because those extra pounds just tells us, we're still here and it's ok. I'd rather be alive with 40 extra pounds then thin and counting the days. Stay blessed we're all beautiful and trying to stay healthy .

May 25, 2019
A MyLupusTeam Member

yes - I had gastric sleeve surgery 2 1/2 years ago - painful slow process, but did lose 83 pounds. Which in turn did help me in many ways - no more sleep apnea and it just felt better not to carry around that much weight. On the other hand - I have regained almost 30 of those pounds due to the inability to regularly excerise due to extreme fatigue and pain and the meds. It is going to be an ongoing struggle with a great deal of stress..which is not a friend either. However, Some weight loss is always better than no weight loss. Its a constant balancing act - but it is my health, my life...I am worth it.

June 26, 2019
A MyLupusTeam Member

I first had a gastric balloon 3 years ago and I lost 25kgs. No more diabetes 2, cholesterol and sleep apnea. It helped my lungs! Felt better in myself and about myself.
Next, I had a gastric sleeve 1 year ago. Still feel better in myself as I have lots of joint pain and I'm always just so tired and I think this helped these problems also. So, do I recommend weight loss surgery? Yes! Yes!! Yes!!!
I researched it all and I went to my GP and we discussed it at great length. The procedures were fine but the initial feeling of weakness and fatigue were really huge. We have Lupus!! It's to be expected. But..... you will get through it and be very happy you did it!!!

June 27, 2019
A MyLupusTeam Member

Today is my 1st anniversary since I had my gastric sleeve. It is not easy but well worth it. I have no diabetes 2, no sleep apnea anymore. My lupus affects my heart and my lungs and I still have problems but I am so much better than I was. Have I got to my goal weight? No. Have I put on a bit of weight? Sadly, yes. It is hard but it is worth it, believe me. I do feel so much better than before I lost what weight I have though and for that it is so very worth it!!!!

June 12, 2019
A MyLupusTeam Member

I had lapband surgery in 2012 I lost 100lbs and I have kept it off plus more. Now it's a total weight loss of 119 pounds. It was the 2nd best decision I made in my life, 1st was marrying my husband. I'm 62 and able to work out at least every other day. The hardest thing is finding the right Dr., mine is fantastic! First make sure you get the ok from your rheumatologist.

February 15, 2020

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