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A MyLupusTeam Member asked a question 💭
New York, NY
April 30, 2019
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A MyLupusTeam Member

Thats what sucks is all our lupus meds take months to work except steroids..only drug that made me able to function and feel great ..but can't be on them long term 😖

April 30, 2019 (edited)
A MyLupusTeam Member

3-6 months

April 30, 2019
A MyLupusTeam Member

My doctor told me it takes six months for the Plaqunil to work.
I was still having too many symptoms after six months and she kept me on the plaqunil and added Imuran.
That helped, she also lets me take 3 to 10 mg a day of prednisone depending on my symptoms and my stress level. I try not to take the prednisone and I have had periods of months where I only needed 3 mg a day, but then usually the severe fatigue and rashes will break through on the face and I’ll need to go up for a week or two to get things back under control.
Most people that I know that have already or lupus are taking more than one medication, but prednisone is my BFF 👯 my primary care physician said that as long as I’m taking 7 mg a day or less as a female I should have no long-term ill health effects. Of course that’s what I wanted to hear, but he is internal medicine and MD VIP. I trust him,
I did want to stop my plaqunil, I feel like my other two meds give me more benefit, but of course the only way I could figure it out is to stop it. I read the medical studies on Google and the statistics for stopping Plaqunil would definitely make it look like it’s a beneficial medication.
What to do???Lupus is an extremely high maintenance partner!!!🐒
I mean seriously talk about high maintenance!🥴

April 30, 2019

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