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A MyLupusTeam Member asked a question 💭
Orlando, FL

For those on plaquenil, did you feel worse before it got better when you started taking it?

August 17, 2019
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A MyLupusTeam Member

I always got a rash in the spring that now I know was from sun exposure. I started Plaquenil in the fall the following spring I didn’t break out in the blotchy itchy rash. As far as taking away any pain I can’t tell the difference. I’m doing well on it. I was first prescribed 400mg for 2 years. It will be 3 years this September since my diagnosis. My dr. Moved me down to 200mg a day.

August 17, 2019
A MyLupusTeam Member

Actually, when I started taking it, I too did not notice any change in my level of pain for months...and then if it did work, it didn’t seem like it did because maybe the level of pain had increased? It’s only after they stopped it (I was off it for a year) that I realized how much it was helping keeping my pain off too...

August 17, 2019
A MyLupusTeam Member

You may or may not “see” the difference i.e. your pain may feel the same, but it’s main purpose is to protect your organs. If your disease is not progressing to affect your kidneys, lungs, hearts, intestines etc. It’s probably working.

August 17, 2019
A MyLupusTeam Member

I have been on it 2 months. I am actually finally beginning to feel some relief. Don't know if its the meds or whats going on but my joint pains has come down ALOT.🙏🙏🙏

August 20, 2019
A MyLupusTeam Member

I’m on Plauquinal & Dr added Methotrexate. Dr said Methotrexate should help with putting Lupus in remission.
I did not know this.
But I’ve only been taking Plauquinal for 7 months.
For those that have been taken off Plauquinal, how did u do ?
Just hoping I can get off meds.
Awful disease.
Prayers to all

August 18, 2019

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