Has anyone else had a negative ANA test and still ended up with lupus? If so, how do I convince my doctor to perform a different type of test?
I have had Ana tests for years that were negative starting at age 20 and even last year (I am 69). My Ana was positive a couple of months ago. Found out by my GI PA who ordered stool sample because of diarrhea/constipation. There were Ana +cells in my stool which then dictated more tests and the Blood Ana came back positive. After 49 years this flare up finally gave me the diagnosis of lupus.As I understand, an Ana is not a diagnosis It is a screening tool for more specific tests.. If your doctor is a pcp then you might want to go to a rheumatologist if you are having symptoms . Change doctors if you are not happy. Read some of the articles on this site and others on google. Good luck. Hugs!
My ANA is always negative as well.
All my other blood work is crazy though, have the rashes, sensitivity to sun, fevers, exhaustion, multiple times with pneumonia, high CReactive(inflammation(RA), 12 pregnancy losses....list goes on.
Now under the care of rheumatologist after 40 yrs of grief
I was negative for six years, but my body told another story. Then, as soon as inflammation started growing, I had a weak positive result. Hang in there. I know that it is so very frustrating. I would ask your doctor to test you for Sjogren's. That is what I ended up doing. They put you on the same meds/treatment plan. It's hard to detect in ANA, but there is a simply lip biopsy that they can do. Ask for one ASAP. (it's on the inside of your lip, pain is minimal)
I had a negative one two years ago when I was having symptoms, symptoms continued and I just got tested again this year and it cane back positive and than they did further testing finding low c3 c4 so I would keep asking to be tested at least once a year because I know I was gettinh the symptoms two years ago but it didn’t show until now