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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyLupusTeam Member asked a question 💭
Lebanon, PA
November 19, 2019
 · 
Reactions
A MyLupusTeam Member

I have been on benlysta injections for over a year now. My sedimentation rate was in the hundreds and now has gone down. I take 200mg once a week and I believe it is working for me.

January 14, 2020
A MyLupusTeam Member

I tried the benlysta a long time ago.. didn't really do much for me at all. So I stopped it. Amen on methotrexate and azamorthioprine..nothing is really doing anything . Any suggestions

October 9, 2025
A MyLupusTeam Member

I also was on methotrexate and my blood work showed it was affecting my liver now i am on NOTHING I am so fustrated bc I feel that the rheumatologist does not get it I need to be on something to slow down the progress of the disease

November 24, 2025
A MyLupusTeam Member

Do you have any side effects?

February 9, 2020
A MyLupusTeam Member

Wondering the same thing. On Acthar Gel right now.

November 20, 2019

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