Praying for you. Call your rheumatologist, he can help. Try Benadryl by mouth and Cortizone 10 or Hydrocortisone cream!

Thank you all for replying. My son visits and loves to go for long walks. I get so itchy just as described and uncomfortable. Because I look okay, i don’t think he and his girlfriend believe this. Liquid Benadryl, hot bath and anti-itch cream bring me back to normal. Never heard of Tumid Lupus.

Yes. I have Stephens Johnson syndrome. Start a prescription, it works great and then after being on it for a few months I break out in hives because I become “allergic” to the drug. Nothing stops it except stopping the drug. Antihistamines help but doesn’t resolve. Sun exacerbates it. Some drugs can also cause this type of sun sensitivity. Don’t wait to long if antihistamines don’t work, whether they are over the counter or prescription, don’t wait too long to get medical help.
Take care!

Being outside in daylight brings mine on. I’m either covered head to toe or in shade. No amount of sunscreen helps or hats

I get them on my scalp as well

Dermatologist can give you cream to help with itch. Don’t scratch makes it worse

Hi I’m sorry your dealing with this. I’m also dealing with horrible hives I actually thought I was going into anaphylactic attacks a couple of times. I had to take several Claritin during the day and liquid benedryl at night or if it got bad and needed immediate relief. It started two weeks after giving birth on the palms of my hand and feet and since spread. I also have lots of pins and needles and this warm sensation that comes and goes. Recently my doctor put me on prednisone to help calm my immune system I’m praying this would help.