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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
July 30, 2020
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A MyLupusTeam Member

I had horrific leg pain and RLS for over a year to the point that I was in tears every night. When I was not up pacing I would wrap my legs up in a heating blanket and pray for sleep. Nights in pain are the longest nights ever. I really don’t know how or why my legs got to the point they are now with tolerable pain. Also I have no idea how I got through those days, they all just ran together. I tried Mirapex, Requip, Neurontin and combinations of all 3. Holistic solutions, I did all but stand on my head and chant. It was a time where I felt so desperate. I don’t think any of the medications helped I think I usually fell asleep from exhaustion. I did stop taking Lexapro which is known to exacerbate RLS. Also make sure your potassium is not low-that can cause leg cramping or for it to be worse. If you have not talked to your doctor about it I definitely would, also research your current meds to see if any exacerbate RLS or tend to deplete your body of potassium. I feel for you and hope you get relief soon.

July 30, 2020
A MyLupusTeam Member

Talk to your rheumatologist about it.

July 31, 2020
A MyLupusTeam Member

I have restless leg syndrome! The Dr put me on repriquile (dont think I spelled that right!) to take before bed! I would let your Dr know whats going on! 🙏💜

July 30, 2020
MyLupusTeam

Many people with lupus experience leg cramps, especially at night. These cramps can range from mild to severe and may occur in the thigh or calf muscles. Some individuals describe them as "jump-out-of-bed-and-stretch" cramps, while others find them more like spasms with excruciating pain. If you experience severe, one-sided Show Full Answer

Many people with lupus experience leg cramps, especially at night. These cramps can range from mild to severe and may occur in the thigh or calf muscles. Some individuals describe them as "jump-out-of-bed-and-stretch" cramps, while others find them more like spasms with excruciating pain. If you experience severe, one-sided calf pain, it's important to rule out deep vein thrombosis, a rare but serious condition.

July 9, 2024
A MyLupusTeam Member

Y’all need potassium pills and I have galt in my feet but I take nurotin 1400 mg it helps too

August 2, 2020

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