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I really dont know if my heart problems started with Benlysta or got worse with the withdrawal of Benlysta. I have been having sporadi chest pains and fatigue with shortness of breath. Anyone else experiencing any of these with Benlysta or since stopping it?

August 21, 2020
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A MyLupusTeam Member

Jitters, blood pressure spiked ,sugar spiked,tremors,gradually got worse threw the 3 years on it,theirs a site with people that have had terrible side effects.

October 2, 2020
A MyLupusTeam Member

Thank you, you as well.

August 22, 2020
A MyLupusTeam Member

Praying you feel better soon.

August 22, 2020
A MyLupusTeam Member

I've been on it on and off for over two years. But I just decided to get off of it. It was not working for me. The side effects were worse than the benefits. It seems to be different for everyone. When I did take it I would be tired too and felt like a flare up was coming on. That would last for a day or so then I would feel OK. But I started experiencing other side effects too. Headaches, migraines, fatigue, excessive sweating, chest pains, shortness of breath, etc. Hope you're one of the ones it works out for.

August 21, 2020
A MyLupusTeam Member

I was just coming on here to ask about benlysta. I started the auto injector today and have been really tired and joint pain. How long have you been on it?

August 21, 2020

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