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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyLupusTeam Member asked a question 💭

I've been on 200mg of plaquenil for 6 months but haven't noticed a change. My rheum says that I shouldn't take a higher dose because the higher doses are for higher weights, is that true? I only weigh 103 pounds, so she says that 200mg is the right dose for me.

She thinks I should add Imuran in a low dose. Does that sound like a reasonable next step, or should I be on a higher dose of Plaquenil first?

Things we're still trying to address: flares (low-grade fever), sun sensitivity, rashes, mouth… read more

June 7, 2021
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A MyLupusTeam Member

I started on 400 mg for about 2 years until my symtotms were under control. I them dropped down to 200 mg and have been on 200 for the last 8 years.

June 9, 2021
A MyLupusTeam Member

That sounds like the right dose fit your weight. Raising it can cause more toxicity and be counterproductive

Is you diagnosis confirmed? Sometimes doctor start Plaquenil to see if a patient sees a change....and often uses that to determine if the problem is truly lupus/autoimmune in nature

6 months should be enough to notice a change for the better if it was going to work. It might not be at max efficiency at 6 months but it should be doing something

Plaquenil is not a cure all. It does not treat all symptoms of lupus. My doctor says it takes the edge off some symptoms and helps protect the internal organs from inflammation. It can make life a little more tolerable. Perhaps some people feel great with it but for others it just turns down the volume a bit.

June 15, 2021
A MyLupusTeam Member

I know i'm late here but yes my reum says the same thing.

July 5, 2021
A MyLupusTeam Member

Love your dog's hair....she's gorgeous!

June 20, 2021
A MyLupusTeam Member

I had what I thought was mouth sores, I surprise when my dentist told me it was from me biting , I bought a mouth guard to keep my self from biting and it work , I later was diagnosed with aniexty , so my case it from nerves.

June 7, 2021

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