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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Lupus/Mixed Connective Tissue Disease

A MyLupusTeam Member asked a question 💭
Ohio, OH

My doctor teeters between Lupus and a mixed Connective Tissue Disease. I have several markers for Lupus but not enough for a definitive dx. I’ve never heard of Mixed Connective Disease. Anyone have a similar story? What’s your take on MCD?

July 25, 2021
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A MyLupusTeam Member

They do the same with Mr. I'm asymptomatic yet with me on the necessary meds to keep me from flaring no test results so up. I was off prednisone for a period of time because of a Rhuemy that refused to prescribe it and I have test to finally show positive for Lupus yet they still say UCTD or MCTD.

Drives me crazy some days .... treatment is my thing as along as it is working.

I have an article I'm gonna post later I think will be interesting to a lot

July 25, 2021 (edited)
A MyLupusTeam Member

Just because you have a positive dsdna doesnt mean lupus, you can have these antibodies and never develop the disease. I have dsna antibodies and titers, reddnes butterfly on my face. High inflamation markers but my C3 and C4 are normal so rhuetologist will not diagnose me with lupus. He wants a skin biopsy when i get a rash. So many people are wronly diagnosed to so many crossovers.

July 25, 2021
A MyLupusTeam Member

My diagnosis was the same ... uctd leaning towards lupus & RA. Xrays showed rheumatoid progression in all joints. Rheumatologist said I'd be given the same medication regardless so started me on plaquenil and leflunomide (immune suppressant), which has helped with symptoms.

July 25, 2021
A MyLupusTeam Member

My Rheumy has me on Plaquenil. Thank you, I look forward to the article!!

July 25, 2021
A MyLupusTeam Member

A few months ago my rthumatologist said I might have that. I went to the dentist and he said the same thing. Are you talking cellcept

July 25, 2021

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