My doctor teeters between Lupus and a mixed Connective Tissue Disease. I have several markers for Lupus but not enough for a definitive dx. I’ve never heard of Mixed Connective Disease. Anyone have a similar story? What’s your take on MCD?
They do the same with Mr. I'm asymptomatic yet with me on the necessary meds to keep me from flaring no test results so up. I was off prednisone for a period of time because of a Rhuemy that refused to prescribe it and I have test to finally show positive for Lupus yet they still say UCTD or MCTD.
Drives me crazy some days .... treatment is my thing as along as it is working.
I have an article I'm gonna post later I think will be interesting to a lot
Just because you have a positive dsdna doesnt mean lupus, you can have these antibodies and never develop the disease. I have dsna antibodies and titers, reddnes butterfly on my face. High inflamation markers but my C3 and C4 are normal so rhuetologist will not diagnose me with lupus. He wants a skin biopsy when i get a rash. So many people are wronly diagnosed to so many crossovers.
My diagnosis was the same ... uctd leaning towards lupus & RA. Xrays showed rheumatoid progression in all joints. Rheumatologist said I'd be given the same medication regardless so started me on plaquenil and leflunomide (immune suppressant), which has helped with symptoms.
My Rheumy has me on Plaquenil. Thank you, I look forward to the article!!
A few months ago my rthumatologist said I might have that. I went to the dentist and he said the same thing. Are you talking cellcept
What Is Mixed Connective Tissue Disease And How Is It Different Than Lupus?
Has Anyone Been Dx’d With Lupus Plus Scleroderma Plus Mixed Connective Tissue Disease At The Same Time? How Bad Is The Prognosis?