Oh my how is taking that dose of prednisone? I've been on only 2mgs.now for well since 2007 started at only 25mgs. just can't get off because I flare up instantly in 4 days,so I'm guessing I'm on this for life.Hope you feel better soon.😊

Oh, my surgery went very well. We are not sure whether I’m developing a post-op infection or spitting a stitch though, so I’m off Lupus meds again and on an antibiotic. Grrr…It’s like restarting from square one every time I have to go off and then start again…I feel your frustration loud and clear.

My SLE test is negative but Sjorgrens positive. I feel like i should have never went down to 200mg, i was doing bettwr on the 400mg. Now i have to wait 4 months for the dosage to work. Good luck with your surgery Bekah2!

According to the MayoClinic the Compliment c1q is completed to identify immune defiency and congenital disorders. They state that a low c1q could point towards an immune complex disease such as Lupus. 200 mg is what is considered a “maintenance” dose for someone with SLE. This would be for someone who is stable and to help prevent a recurrence of symptoms. In other words, they would be in remission at the time. 400 mg is used for those in the active phase to try to protect the organs and prevent flares.
Reference ranges for the c1q are 12-22 mg/dL.
In my very humble opinion, plaquenil alone did not help my activity. I had to start on two other medications, and I’m still having issues, but this is because I had to stop for surgery. It’s like starting all over again.
Hope this helps. Sorry for the delay!

I strated at 20mg then went down to 10 mg after a week.