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A MyLupusTeam Member asked a question 💭
Henderson, NC

Hi lupus fam, i havent been on here in a while and its definitely going to take me a while to catch up. So most of u know that ive been having this pain in the left side of my stomach with swelling for the past few months with no answers. So today i went to the ER the pain is now constant and never going away and the ct report said that my gallbladder is contracting/shrinking and i have no clue what this means. Have to follow up with the gastroenterologist and see what he says, but i just wanted… read more

February 28, 2022
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A MyLupusTeam Member

Mine was taken out due not working right it was working 10 percent was told was from my lupus

February 28, 2022
A MyLupusTeam Member

I had mine out years ago in emergency surgery when it became blocked due to treatment with antibiotic Rocephin. Pain was minimal, mostly some soreness from being inflated with the gas for endoscopic procedure, three very very tiny scars, one in bellybutton is hidden. No trouble with foods though it may have impacted digestion, nutrient absorption many years. You could look into TUDCA and oxbile for help processing fats etc that the bile acids usually help with.
And BTW gall bladder is on the right side just below the liver.
Don’t rush into having it out. There are treatments and supplements you could try first.

March 1, 2022 (edited)
A MyLupusTeam Member

Mine is taking out due causing pain and I felt better after.

March 1, 2022
A MyLupusTeam Member

Sorry I didn’t think to look up “contracting/shrinking gallbladder” before. Did you read your doctors report? Sometimes the details help me more than how the doctor explains in his/her own words. You might find these articles helpful https://www.healthline.com/health/contracted-ga...
https://www.medicalnewstoday.com/articles/colla...
I would say don’t rush to have your gallbladder out. It is an important organ that is often treated surgically when other conservative measures could be tried first.
https://deserthealthnews.com/story/improving-di...
I thought I had no trouble with foods in the years following my gallbladder removal. Recent testing has revealed it has greatly reduced my secondary bile acids, something I am still researching and need to improve so I can better process foods and improve nutrient absorption.
Also in lupus (which I do not have) many here have experience of autoimmunity causing inflammation, pain, etc in various organs. It can be challenging to figure out which organ is causing the pain. Right side versus left side often helps distinguish or leaves clues as to which organ. I often look up anatomy images on Google. This often helps me narrow the search as well as rule out other organs, conditions,… Most of the time it’s like following a trail of breadcrumbs.
Hope this is helpful and not overwhelming

March 9, 2022 (edited)
A MyLupusTeam Member

Over many years, my gallbladder would give me severe pain but they couldn’t find stones.
Eventually, my gallbladder became infected & had to be removed
A year or so later, my pancreas would become inflamed & after many many years, my liver.

After I was diagnosed with lupus & undifferentiated connective tissue, my doctors believe my problems were autoimmune all along.

My lupus medication has almost stopped the attacks & liver enzymes have been really good!

Prayers for you,
Betty

March 2, 2022

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