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A MyLupusTeam Member asked a question 💭
Lauderdale, MS

Does anyone take steroid injections or by mouth to just simply exist and be able to get out of bed? Please any experience or suggestions.

April 4, 2022
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A MyLupusTeam Member

I take prednisone daily without any problem...kkc

May 6, 2022
A MyLupusTeam Member

I'm on 10mg of Prednisone. Also just started back taking the Benlysta injection once a week.

April 10, 2022
A MyLupusTeam Member

@HenryYe I was told to not eat all those things. That's why I said I avoid those. The other blood thinners are not good for me I react to them. And I do eat some, I just have to be careful of the amount. Like everything, its a balancing act! You keep fighting too.

April 5, 2022
A MyLupusTeam Member

I've been taking steroids for over 30 years. Yes, I have some osteoarthritis but without it I can't move. It keeps my inflammation under control.

April 4, 2022
A MyLupusTeam Member

My first Rheumatologist was Prednisone /Steroid prescription happy. I didn't know Any better and was on Steroids for over 4 years! My current rheumatologist told me that she's pretty sure that's what caused my Osteoporosis as well.
Now she only Prescribes it if I'm in a bad Flare
It does help but Long term effects are pretty bad.
Hang in there ❤️

April 4, 2022

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