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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyLupusTeam Member asked a question 💭
Norwich, CT

Hi everyone. I was diagnosed with SLE and RA last September...after incredible edema from my calves to my toes, almost daily fevers, chills and complete and utter exhaustion daily. After a million blood tests, CAT scans, 12 prescriptions and now 7 doctors, once test can not be answered. I have a score of almost 300 on my Fungitell tests. No bacteria has been found. My infectious disease doctor has tested me for everything from lead to bat droppings..no lie. Everything has come back negative… read more

August 15, 2022 (edited)
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A MyLupusTeam Member

Negative on all 3 tests. Also negative on Lyme. I get panels done at least twice a week. So frustrating. 😠

August 15, 2022
A MyLupusTeam Member

Could it be lyme disease? Do you live in the countryside?

The symptoms could be from lupus as well. We feel all these symptoms.

I also have a nodule in my lung. Of 7mm. They checked twice in 4 months and it didn't grow. They said it doesn't look like cancer and it's probably a just a gland. Maybe that's your case too?

Hope you find your answers soon. Hugs

August 15, 2022 (edited)

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A MyLupusTeam Subscriber asked a question 💭