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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has Anyone Tried Benlysta? Side Effects? Benefits?

A MyLupusTeam Member asked a question 💭
York, NE

I am considering benlysta and my doctor wants me to take it (infusion). I am worried about side effects.

December 24, 2022
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A MyLupusTeam Member

I was on Benlysta from 2021 til October of this year and I had the IV infusion done in my doctors office. I stopped getting them because Benlysta was causing me to get low blood pressure and low white blood count. I am still on Plaquinil

December 24, 2022
A MyLupusTeam Member

I was on Beneslysta from August to September of this year had to give my self an injection once a week. I caught covid the first week of September, didn't know I had it till I went to my rheumatologist, that day I was feeling bad having severe headaches really bad, cough, cold chills, and I lost my taste ,so he had me go take a covid test, and he stopped the Beneslysta, because we didn't know if it was part of the reason for the headaches, because that is one of the side effects of Beneslysta, there's a ton of side effects, do your research. I pray that all will go well and that you will be okay in the name of Jesus.

December 24, 2022
A MyLupusTeam Member

That just about covers all the side effects a person can handle

December 24, 2022
A MyLupusTeam Member

I’m on simponia aria and it was great till I had a new stress in my life. I got hit by a 2 ton ai robot at work and out on work comp but they aren’t paying me so I can’t provide for my family which just stresses me out more. The infusions really do help and as long as you do everything dr says eat well and take good care of yourself it is a huge help. I couldn’t get my infusion because I had surgery and my body went into chaos. I wouldn’t worry as long as you trust your dr.

December 24, 2022
A MyLupusTeam Member

I'm curious about this also!?

December 24, 2022

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