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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Morning Warriors. Is There Anyone On Benlysta? If So, What’s Your Thoughts?

A MyLupusTeam Member asked a question 💭
Menifee, CA
January 13, 2023
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A MyLupusTeam Member

I have been using Benelysta for about 6 months now and speak highly of it. My flares are farther apart, and don’t last as long while having them.
I am also using imeran and plaquinal.

January 15, 2023
A MyLupusTeam Member

@ ReneeHutchman. Are you seeing a rheumatologist? A rheumy will put you on Hydroxychloroquine (plaquenil). It really helps with swelling and is the best long-term choice.
If you're not getting improvement with prednisone, the dose is too low. Your doctor must be playing it safe. It usually starts with 50mg for 2-4 days, step down to 40mg, 30mg, 20mg, then 10mg for a few months. The Hydroxychloroquine should take full effect at 4-6 months and then quit prednisone.

July 12, 2024
A MyLupusTeam Member

No I am not seeing a rhuemy, I am just on prednisone which doesn't seem to help unless I do a dbl dose which is 60 milligrams. I have a appt on the 22nd. Hopefully she will give me something else.

July 12, 2024
A MyLupusTeam Member

My doctor just has me on prednisone, my swelling is not getting better... especially in my hands.
Are there better alternatives? Osteoporosis runs on my Mom's side of the family

July 3, 2024
A MyLupusTeam Member

I did Benlysta injections 1 year - not much change. No side effects. I get infusions now - big big improvements. No sun rashes. Far less fatigue. Less swelling, but that'll never go away no matter what you take (prednisone works really well for swelling - but stay off prednisone - it speeds up osteo issues).

December 13, 2023 (edited)

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