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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
February 11, 2023
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A MyLupusTeam Member

Child I hurt all day everyday! I don’t know what it means to not hurt. I just told my sister I hate when someone ask how you, I just say okay because people judge you if you tell them I hurt every day. So i want have to curse people judging tails out I say I’m okay 🤣🤣

February 11, 2023
A MyLupusTeam Member

Stress and diet give me flare-ups.
My solution to manage the symptoms is to stay on a low histamine soy free diet and remove processed foods. Of course it does not cure lupus, but it makes the difficult side effects minimal. Joint pain, liaisons., brain fog are all minimal when I stay on a clean low histamine diet. I say I am not fun to eat with but I am healthier.

February 12, 2023
A MyLupusTeam Member

Yes I do have more pain like that at night. I think it is because I am distracted and busy during the day.more noticeable when I lay down to rest

February 11, 2023
A MyLupusTeam Member

My legs bother me when I am trying to relax. I deal with my knumb toes too. Has to do with nerves dr. Says. If I need to bad enough I take a tylenol.

February 14, 2023 (edited)
A MyLupusTeam Member

I had terrible pain on the top of my feet, ankles and toes. I was first told it was due to arthritis so I went to PT & they pressed on the top of my feet which made the pain worse. Then I learned it was more likely that it was nerve pain. I was given Gabapentin and it was a life saver. It doesn’t take it completely away at all times but it’s so much better. Ask about it and see if Dr says to try it. Best of luck!

October 4, 2023 (edited)

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