Connect with others who understand.

  •   Learn from expert-reviewed resources
  •   Real advice from people who’ve been there
  •   People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I wear the warmest pjs I can find or the heaviest sweater and warmest flannel 🥶pants. Then on top of that I usually wear a heavy lined robe. Mornings are the worst. It can take up to 3 hours for me to get somewhat warm. Hot coffee helps to warm my insides (usually about 3 cups of very hot coffee). Taking a shower is miserable getting undressed and stepping into the shower. I have my little heater with me. We don't have a tub so I can't soak in hot water. Its really hard to get up out of… read more

February 25, 2023
 · 
Reactions
A MyLupusTeam Member

I turn up the heat in the morning and let the shower steam up the bathroom before I disrobe. I think I’ve shared with you before about the Heatholders socks, etc, fleece lined base layers,…? Let me know if I haven’t and I’ll add a list.
I also turn on the electric blanket about thirty minutes before bed so it can warm the bed up for me. My internal temperature is typically 96.5.
Doc found low thyroid and low ferritin (should be 100), other possible contributors to feeling cold.
Also my neurologist had me increase humidity in home. It helped

February 25, 2023 (edited)
A MyLupusTeam Member

Yes I stay cold a lot. Most of the time I have on long sleeves along with a jacket on and a blanket over my legs. When I’m at work my office heat is on high and I still have on my long sleeves and jacket

February 25, 2023
A MyLupusTeam Member

Electric blanket helps and heating pads.

February 25, 2023
A MyLupusTeam Member

I have this. I use a bathtub heater I found on Amazon and I have 3 electric blankets plus a rechargeable heating pad for my back

February 25, 2023
A MyLupusTeam Member

I get hot an cold. Menopause ya go trough hot lashes and orr. Lupus flares aren't fun either. I keep y fuzy blanket close.

August 4, 2023

Related Questions

View All
A MyLupusTeam Member asked a question 💭
Puyallup, WA

A MyLupusTeam Member asked a question 💭
Paton, IA

A MyLupusTeam Member asked a question 💭
Newquay, UK