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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyLupusTeam Member asked a question 💭
Fort Wayne, IN

I was diagnosed in February with skin lupus. Drs have given me different steroid mouthwashes, had me be seen by oral surgeon, ENT and no answers. Does anyone suffer with this and have they had relief from mouth burning?

April 22, 2023
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A MyLupusTeam Member

Magic mouthwash is a mouth-rinse mixture. It's made of different medications used to relieve pain from mouth and throat sores. There's no standard set of ingredients or directions for magic mouthwash. Your healthcare provider will determine which ingredients may work best for you. God bless

April 22, 2023
A MyLupusTeam Member

I do have one that’s similar and have had to change my prednisone dosage over past 3 months due to flares. I’m not sure either.
Was going to ask my doctor on Thursday.
So not sure Nancy sorry.💜

May 1, 2023
A MyLupusTeam Member

There is a condition called burning mouth syndrome. I have it and saw a few different Drs. I was told it is neurological and there is no treatment for it. It is frustrating. I avoid acidic foods. No regular mouthwash. Closys is good. No mint in it. I notice some days/weeks are better than others.

April 30, 2023
A MyLupusTeam Member

Thank you

April 22, 2023
A MyLupusTeam Member

Has anyone experienced getting these spots? They seem to last about 2 weeks and started when I went from 30mg Prednisone to 20 and now I'm on 10mg.

May 1, 2023

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