Connect with others who understand.

  •   Learn from expert-reviewed resources
  •   Real advice from people who’ve been there
  •   People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
April 16
 · 
Reactions
A MyLupusTeam Member

This may be an unusual allergic reaction, Jeannette, so please check in with your doctor.

April 17
MyLupusTeam

Are you experiencing burning patches on your skin and in your mouth after Saphnelo infusions?

Burning sensations on the skin can occur with lupus for several reasons. These sensations might feel like random hot spots, chemical burns, or areas that hurt to touch. Some people describe patches of warmth that come and go, while Show Full Answer

Are you experiencing burning patches on your skin and in your mouth after Saphnelo infusions?

Burning sensations on the skin can occur with lupus for several reasons. These sensations might feel like random hot spots, chemical burns, or areas that hurt to touch. Some people describe patches of warmth that come and go, while others experience burning that lasts for hours.

Common causes of burning skin sensations in lupus include:

- Cutaneous lupus, which can cause painful, itchy, and burning skin lesions or patches
- Peripheral neuropathy (nerve damage), which can create burning pain in affected areas
- Medication side effects from lupus treatments
- Light sensitivity reactions, even from indoor lighting

Since you're noticing this pattern specifically after each Saphnelo infusion, it's important to discuss this with your rheumatologist right away. They can determine if this is a reaction to the medication or if your lupus symptoms need better management.

Contact your doctor immediately if you experience:
- Rash that spreads quickly or covers large areas
- Blisters or severe skin changes
- Swelling in your face, lips, tongue, or throat
- Signs of infection like warmth, oozing, or fever

Your healthcare team can help identify whether adjustments to your treatment plan are needed to prevent these uncomfortable symptoms after infusions.

April 16

Related Questions

View All
A MyLupusTeam Member asked a question 💭
Minneapolis, MN

A MyLupusTeam Member asked a question 💭
Fort Wayne, IN