Why is it that we feel bad whenever we need help? We are our best advocates, and sometimes our only advocate. I say cry wolf, cry it as loud as you can!!

I had orange urine as a teen (so orange it looked like Tang 😁 - okay, I might be aging myself with that one). Turned out I had hepatitis. Don't let the doctors off the hook, we have enough issues!

Kerry8, you are in my prayers, know that you are not alone, we are all here to support you. I hope your appointment goes well. I would really suggest you see you r doctor sooner than later, you seems like your are suffering so much.

Update 7/5/23 I called rheumatology office this morning telling them I was cutting back one pill. Got a call back that doctor said to cut them both out and we will discuss at my end of month appt! I don't think I should have been put on them. Hopefully it hasn't done too much damage to my body......

Kerry, this sounds like a flare, but if you're running a fever over 101, it's best to get checked out to ensure you haven't developed an infection. It can take 2-3 months sometimes for plaquenil to start working. Take care.

I hope you feel better medication side effects takes time to adjust there is no solution to this mysterious disease prayers and hugs