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So I last saw new CLL doc on 10/9/23. He was going to call lupus doc to discuss Rituximab infusions. After two weeks of not hearing anything back I called lupus doc to see if he had called. They were playing phone tag but lupus doc called me back that day and said they had spoken and agreed that was the way to go and CLL doc would call me that night. This morning, 2 weeks after the lupus doc conversation I get an email this morning confirming my 8:30 am appt with CLL doc two hours away. I called… read more
Oh wow Kerry, I am so sorry this is happening to you. Stressful times are so difficult, but I’m glad you are here. We support you on this journey ❤️🙏🦋
Kelly8 you really need to stand up for yourself and call the doctors and get an appointment or answers the long this goes on the long you wait for answers. You need answers now!!
@A MyLupusTeam Member lol thank you. I don't mind soap box serenades 😁❤️
@A MyLupusTeam Member and the others said everything I would have!
HUGE HUGS going your way.
I’m so sorry you going through this. It’s hard to fight when your sick and hurting. Is there anyone else that can jump the hurtles?
I hope it straightens out soon. Be blessed
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