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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyLupusTeam Member asked a question 💭
East Hampton, NY

Sometimes during the night I either go every hour or every two hours (I haven't slept through the night in months if not longer) and constantly during the day. I just had full urinalysis done and everything was perfect. I feel so stupid cos I know doc think I'm a hypochondriac! But I am the one experiencing it!! 🙁 is this a lupus thing or a leukemia thing? Thanks all...

November 19, 2023
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A MyLupusTeam Member

@A MyLupusTeam Member mentioned Axonics. I’d never heard of it so I looked it up. It’s a therapy for incontinence among other things. In case anyone else is curious…https://www.urology.uci.edu/general_urology_axo...

November 19, 2023
A MyLupusTeam Member

When you have lupus we tend to get a lot of uti s so get urine checked

November 19, 2023
A MyLupusTeam Member

First Happy Thanksgiving all!! ❤️❤️❤️ I am trying to cut back liquids before bedtime, almost like now I have my dinner dessert at lunchtime to keep the sugar away from my brain at night! The other morning I was up twice and then slept til 7 am 😳😳😳😳😳😳wow was that ever fantastic!! A lot of people who this happens to told me that taking BP pills is a big reason for peeing during the night so I guess it may also depend on when you take it!
Shoulder hurting so no more writing tonight! I had a wonderful Thanksgiving here at home with family and neighbors. Hope you all enjoyed the same ❤️🦃

November 23, 2023
A MyLupusTeam Member

I have CKD. .My kidneys function best when I am laying down so bedtime is oops I better get there quick wake up events..not bad during the day. I hesitate about reducing fluid intake for fear of dehydration so just put my getting up trips as "Yay my kidneys are working!"

November 22, 2023
A MyLupusTeam Member

It’s wonderful if you can handle it

November 19, 2023

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