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A MyLupusTeam Member asked a question 💭
North Chicago, IL

I went to doctors, my rheumatologist, dentist...they all finally concluded that that's what I was. By process of elimination..I was also diagnosed with Sjogrens. It's like a burning sensation...can be very painful...I do use a mouth wash daily. Unfortunately, it still presents itself too often

December 8, 2023
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Mouth and Nose Sores in Lupus: Pictures, Treatments, and More Read Article...
A MyLupusTeam Member

I’ve had burning mouth syndrome for over 15 years. It took years for my doctor to diagnose it, I went to my dentist for a normal check up and he was the one that figured it out. I had asked him to be gentle when I went in because I was having mouth/tongue pain really bad. He asked me more about my pain, excused himself then came back 5 minutes later with a handful of paper and said he had researched my symptoms on the internet and thought I had BMS. When I got home I read the information and was shocked how it described everything I’d been going through. There’s no cure but at least I felt better finding a name for my pain and that I wasn’t going crazy! Within a few months I started feeling horrible and was diagnosed with lupus and neuropathy. Because of my neuropathy I take medication for my nerve pain and it has helped my mouth so much! It still hurts 24/7 but the pain is doable. When it’s really bad I use the Magic Mouthwash which pretty much numbs the mouth for a bit so you can fall asleep easier. Lupus plays havoc on the body, I pray all the time none of my children inherit this horrible disease.

February 5, 2024
A MyLupusTeam Member

My dentist prescribed my Magic Mouthwash, but the pharmacies around here don't have the ingredients. Good luck and sending Hugs your way.

December 11, 2023
A MyLupusTeam Member

I use Biotene mouth rinse and it has a bit of a numbing effect for me but doesn't for other people I've talked to. It helps some for dry mouth also. The burning is so mentally exhausting too at times, I hope you find something to help you. Hugs

December 15, 2023
A MyLupusTeam Member

Sugar-free hard candies also help to stimulate some saliva production.

December 10, 2023
A MyLupusTeam Member

I have this too, Dont. Drinking water frequently helps!

December 10, 2023

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