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A month ago my student was telling me how her boyfriend left her bc she was in so much pain, she could not be hugged. Simple touch on the arm would leave her crying. He thought she must be cheating on him. She also told me she was too tired to do anything like housecleaning or go anywhere…and she was pretty angry at Lupus
Today, she sought me out to tell me her good news.. practically no more pain after SCT. She even looked down almost laughing and said look, I can wear heels now! I actually… read more

January 17, 2024 (edited)
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Answer Summary

Members shared a range of personal experiences and perspectives on stem cell therapy (SCT) for lupus, inspired by one member's student who... Read more

Members shared a range of personal experiences and perspectives on stem cell therapy (SCT) for lupus, inspired by one member's student who reported being 80% better after just one month of treatment. Several members described relatives or friends who had tried SCT with mixed results, noting that cost and travel were major barriers, while others expressed cautious interest and cited research suggesting it may help those with severe lupus that doesn't respond to standard treatments. A recurring theme was hope balanced with hesitation, as many felt they would try SCT if it were affordable and covered by insurance, but wanted more safety data before committing.

A MyLupusTeam Member

If the stem cells were harvested from my own body, if I could afford it and if I trusted the medical professionals, I would do this. Yes, there are a lot of ifs, but isn’t much of life a dilemma?

January 17, 2024
A MyLupusTeam Member

Here's the abstract from a 2021 immunology journal article on the subject:
Abstract

"Systemic lupus erythematosus (SLE) is a chronic autoimmune disease. Although previous studies have demonstrated that SLE is related to the imbalance of cells in the immune system, including B cells, T cells, and dendritic cells, etc., the mechanisms underlying SLE pathogenesis remain unclear. Therefore, effective and low side-effect therapies for SLE are lacking. Recently, mesenchymal stem cell (MSC) therapy for autoimmune diseases, particularly SLE, has gained increasing attention. This therapy can improve the signs and symptoms of refractory SLE by promoting the proliferation of Th2 and Treg cells and inhibiting the activity of Th1, Th17, and B cells, etc. However, MSC therapy is also reported ineffective in some patients with SLE, which may be related to MSC- or patient-derived factors. Therefore, the therapeutic effects of MSCs should be further confirmed. This review summarizes the status of MSC therapy in refractory SLE treatment and potential reasons for the ineffectiveness of MSC therapy from three perspectives. We propose various MSC modification methods that may be beneficial in enhancing the immunosuppression of MSCs in SLE. However, their safety and protective effects in patients with SLE still need to be confirmed by further experimental and clinical evidence."
https://pubmed.ncbi.nlm.nih.gov/34659214/

So it may be something to consider if your lupus is refractory, in other words, severe and not responding to standard treatments. Safety data is still lacking.

How wonderful it worked for your student! I personally would not try it until there's more data.

January 17, 2024 (edited)
A MyLupusTeam Member

Have you read @A MyLupusTeam Member’s (Henry E Young) story? Or read his research? He’s a rock star when it comes to stem cell research, knowledge and treatment. Google him, you’ll see. Or start by reading his story.

January 18, 2024
A MyLupusTeam Member

Sounds promising but in early stages. Praying for more trials to be positive.

January 17, 2024
A MyLupusTeam Member

Theres no cure for lupus at the moment, You can control the lupus with medication. I hope they can find a cure for this.

January 17, 2024

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