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A MyLupusTeam Member asked a question 💭
Decatur, GA

I started experiencing symptoms of vertigo. Mostly dizziness when I get up or bend down, and an overall feeling of unsteadiness. Is that how it feels because I was also feeling dehydrated and fatigued yesterday.

February 3, 2024 (edited)
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A MyLupusTeam Member

I have severe constant vertigo from inner ear damage. The most common cause, as we age, is calcium crystals. Here's info and cure for the crystal movements:
BPPV is caused by a problem in your inner ear. Your semicircular canals are found inside your ear. They detect motion and send this information to your brain. The utricle is a nearby part of the ear. It contains calcium crystals (canaliths) that help it detect movement.

Sometimes these crystals detach from the utricle and end up inside the semicircular canals. When these crystals move inside the canals, they may send incorrect signals to your brain about your position. This can make you feel like the world is spinning. This is called vertigo.

Dr. John Epley designed a series of movements to dislodge the crystals from the semicircular canals. These movements bring the crystals back to the utricle, where they belong. This treats the symptoms of vertigo.

Read more: https://www.hopkinsmedicine.org/health/treatmen...

Home Epley Maneuver
Home Epley Maneuver
February 3, 2024 (edited)
A MyLupusTeam Member

There’s actually 2 types of vertigo. I had both more than once … sometimes short periods like 2-3 months and other times longer. After a while, I kinda got used to it.
With the first type, you just can’t move. I’ve heard several co-workers talk about their inability to get out of their chair when they had it! For me, I got stuck in bed and I couldn’t move… just yell, “what’s happening to me… I can’t move!!!”… and scare my poor kids into scrambling to help me! They finally handed me a bottle of water and I poured it over my head in an attempt to stop whatever was happening to me. I think in my haste to get relief I tossed the water on my face so fast that it splattered over my head as I lay on the bed and bc my senses were so heightened the water literally sounded like a really loud waterfall as it hit the floor and suddenly I found myself lying on my back in a lake with water just covering my ears as I went into a peacefuI calm. I vividly remember the waterfall , stones, grass, flowing water around me, etc. and it all seemed so surreal! I felt like I was there at the lake and still laying in bed listening to my kids panic. (I explained it to a doctor once but he gave that blank stare that makes you feel crazy so I always left that part out when a doctor asks me for details.)
The other more common type of vertigo is basically a spinning room. The cause usually is that some tiny rice-like object has somehow moved into the wrong channel or section of your ear.. The Internet solution: As soon as the room is about to spin… focus on a non-moving object like a clock on the wall… and the spinning will break! That always worked for me.
Motion sickness pills work too as well as the patch.
Also, for the record, a doctor told me vertigo DOES NOT affect your driving… which was excellent news since I thought I might have to quit my job.

February 4, 2024
A MyLupusTeam Member

@A MyLupusTeam Member is right on target--there are different causes of dizziness.

Vertigo is a sensation of motion- you feel either you or the room are moving. It is usually an inner ear problem, but it can also, far less commonly, be brain or brain circulation-related.

The second is lightheadedness or faintness related to blood pressure issues from dehydration, severe anemia, or conditions or medications that lower blood pressure. As we age, we are more prone to this, as our bodies don't compensate as well for sudden position changes, like jumping out of bed.

There is a third less-well-defined type of dizziness, which is more of an unsteadiness due to multiple factors. It's more common in older people due to a combination of vision and hearing issues, muscle weakness, age-related neuropathy, etc.

February 4, 2024 (edited)
A MyLupusTeam Member

I get vertigo with sinus issues too. My doctor gives me meclizine and has me take mucinex and it helps. Also he does a sort of flipping procedure in the office that helps too.

February 3, 2024
A MyLupusTeam Member

I wouldn't call my condition vertigo. But, I have had balance issues for a long time. When I go for a walk, I feel like I am going to fall off the pavement. It is very weird. When I walk down a hallway, I can't walk in a totally straight line. I'm good at faking it. Sometimes I will slide my hand or arm along the wall as I walk when someone is behind me. When my eyes are closed, I see circular swirling clockwise, then counterclockwise. Sometimes it looks like a funnel cloud swirling. I don't see it with my eyes open. Lots of weird stuff with this lupus crap, right?

February 5, 2024

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