I did not experience any hair loss, but my understanding is that it is typically due to inflammation in the scalp. There should be topical treatments to help control the inflammation, stopping the hair loss. (Typical hair loss remedies would not be effective, and might make it worse if they cause any irritation.) Speak to your rheumatologist or possibly a dermatologist.

I started losing my hair years ago. it used to ne unusually thick, now its thin. but I'm not balding. I haven't had to shave my legs since around 2010. ir my underarms.

That is encouraging news! Benlysta is the next medication my rheumatologist wants me to try.

Yes I’ve been noticing my hair is thinning and falling out especially in the front. Using rogain and nutroful for 3 months and really not seeing a difference….any suggestions?

I sure have had such a thick head of hair and now so thin