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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
June 6, 2024
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Do You Know the Top 5 Lupus Symptoms? Read Article...
A MyLupusTeam Member

Yes I do...I look like I'm pregnant sometimes, I get so uncomfortable

June 6, 2024
A MyLupusTeam Member

Yes, I do and my cardiologist likes to put in my visit summary: obese with stomach distention???? I have put on so much weight and all docs say obese by calories … which is not true. I did have one dr have me do a food journal and he said I really didn’t eat that much and I had always been skinny. So , doing research I found out: I have an esophageal hernia 5cm that I’m waiting to be fixed but other things need to come first. But it can distend your upper stomach!!!!! Which is where exactly my cardiologist always points out!!!???? She wanted me to lose weight? Who wouldn’t?? It’s not easy! Well for some reason it started happening but not by me doing anything. I was getting fuller faster. And it felt like food and meds were getting stuck in my throat. I was being worked up for surgery for hernia and they found that I had Esophageal Dysmotility. So no hernia surgery. This has to be fixed first. It’s also why I’ve lost 24lbs and have gotten pleurisy and aspirated pneumonia in both lungs. Sorry so long and off the subject but also it all goes together in the story but complicated.

June 7, 2024
A MyLupusTeam Member

This is how I am. My body is so swelled up. I am SOOO embarrassed to go anywhere. I am miserable all the time. None of the pants I bought the beginning of summer fit anymore. Half the shirts in my closet don't fit anymore. Even my bras are getting too tight to wear. I have spent probably $4000 in the last 3 years on new clothes. Trying to keep clothes that fit me. I just got bigger and bigger every day. It is Sooooo depressing. I dont know how much longer I can deal with this.

January 1
A MyLupusTeam Member

Same here - I am embarrassed to go out in public looking pregnant!

October 7, 2025
A MyLupusTeam Member

Yes, and steroids cause us to gain belly fat, unfortunately.

June 8, 2024

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