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Could you help me with recommendations please?? Symptoms!!

A MyLupusTeam Member asked a question 💭
Mascotte, FL

Right now my symptoms are: I feel very tired, difficult to get out of bed in the morning, pain in my joints, but the thing that bothers me the most is my head, different sensations in my head every day and it's not just migraines. Could you help me with recommendations please?? 😊 I'll read them. Thank you!!

July 1, 2024
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A MyLupusTeam Member

I'm sorry it's so hard for you. The head sensations are something I can relate to...sometimes I put lavender and peppermint essential oils on my scalp, ice or heat, bone and body salve from natures warehouse ( u can find online) I also get massages every couple weeks. Unfortunately there's no quick fix, but I'm glad to share what helps me. The joint pain I understand, I use a tens machine, menthol creams, etc and it takes the edge off but I'm ready to try prescription meds . The exhaustion...the only thing I can do is rest and more rest. I've tried lots of natural remedies and they didn't work for me but maybe they will for you. Things like licorice, rhodiola, b vitamins etc do help some people with energy. If you google adrenal supplements, you will find some options out there. Praying for you

July 2, 2024
MyLupusTeam

Of course! Here are some recommendations for coping with lupus symptoms based on the provided context:

Coping with Lupus Symptoms
1. Brain Fog
- Question: Does anyone know if memory fog or loss is mainly during a flare-up
- Recommendation: Brain fog can be a common symptom during lupus flare-ups. Keeping a journal Show Full Answer

Of course! Here are some recommendations for coping with lupus symptoms based on the provided context:

Coping with Lupus Symptoms
1. Brain Fog:
- Question: Does anyone know if memory fog or loss is mainly during a flare-up?
- Recommendation: Brain fog can be a common symptom during lupus flare-ups. Keeping a journal to track symptoms and discussing them with your doctor can help manage this issue.

2. Pain:
- Question: I have mild joint and muscle pain daily, is this common with you too?
- Recommendation: Mild joint and muscle pain is common in lupus. Over-the-counter pain relievers, prescribed medications, and gentle exercises may help alleviate pain.

3. Skin Rashes:
- Recommendation: Protect your skin from the sun by using sunscreen and wearing protective clothing. Consult your doctor for topical treatments that can help manage rashes.

4. Insomnia:
- Question: What do you use for insomnia?
- Recommendation: Establish a regular sleep routine, avoid caffeine before bedtime, and create a comfortable sleep environment. If insomnia persists, discuss it with your doctor for potential treatments.

5. Scalp Dryness:
- Question: Does anyone have advice on scalp dryness?
- Recommendation: Use gentle, moisturizing shampoos and conditioners. Avoid harsh hair treatments and consult your doctor for medicated scalp treatments if necessary.

Additional Tips
- Emotional Well-Being: Managing the emotional impact of lupus is crucial. Connecting with support groups, such as MyLupusTeam, can provide emotional support and practical advice.
- Preventing Flares: Follow your treatment plan, avoid known triggers, and maintain a healthy lifestyle to reduce the risk of lupus flares.

For more detailed information, you can visit the resources provided in the context:
- [Coping with Symptoms and Lupus](https://www.mylupusteam.com/resources/coping-wi...)
- [Lupus Appointment Guide: 8 Tips for Visiting a Rheumatologist](https://www.mylupusteam.com/resources/8-tips-to...)

Feel free to ask more specific questions or share your experiences for tailored advice!

July 1, 2024
A MyLupusTeam Member

I completely understand and am having all kinds of head sensations right now too - upcoming neuro appointment next week, but it feels like a long time between now and then. For the fatigue and pain, I do find low dose naltrexone very useful in conjunction with other meds. Could be worth a try!

July 2, 2024
A MyLupusTeam Member

Are you in a flare?

July 2, 2024

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