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Members connected over tingling and numbness in their toes and hands, sharing that many were told it could be lupus-related neuropathy,... Read more
@A MyLupusTeam Member I get that kind of pain in random areas of my feet when I lay down in bed. My podiatrist had no answer. I rub Voltaren or Biofreeze on the pain areas as soon as they occur. It does help.
I just never realized that. I have had a mild form of lupus since the beginning with no organ involvement. I mainly experience joint pain and muscle pain and fatigue when I have a flare.
I have Reynards and when the weather is cold I see it trying to act up. I also get numbness in my feet when they are too cold. So, I double sock it and wear compression splints for my hands. I also get numbness in my feet when I over exercise in one setting. When that happens I go sit down and it goes away. I am getting over a flare and when my lungs are back in shape I will ask my doctor for a Neurology consult. I am just tired of testing right now and just give my body a chance to heal from Long Covid and flare. God bless
Yes, I have mostly at bedtime. Many people with lupus experience neuropathy.
Frankie, I also deal with neuropathy. If I am sitting in the same position too long, my toes on my left side go numb. Changing positions and some gentle lumbar stretches helps.
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