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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
January 18, 2025
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A MyLupusTeam Member

I have an eye disease Keratoconus and that's how I was recommended to be tested for Lupus because the Opthamologist had only treated patients with Lupus or Diabetes with this eye condition. This was in 1996 and I didn't get the Dx of Lupus til 2008. I know have both Keratoconus and Diabetes but have had corneas transplants 2 restore my vision with sclera lenses

January 18, 2025
MyLupusTeam

Double vision (diplopia) can occur in lupus due to nerve damage, such as trochlear nerve palsy, often linked to lupus-related vasculitis or inflammation. It may also result from medication side effects. Immediate evaluation by an eye doctor and rheumatologist is crucial to determine the cause and adjust treatment, which may Show Full Answer

Double vision (diplopia) can occur in lupus due to nerve damage, such as trochlear nerve palsy, often linked to lupus-related vasculitis or inflammation. It may also result from medication side effects. Immediate evaluation by an eye doctor and rheumatologist is crucial to determine the cause and adjust treatment, which may include steroids or immunosuppressants. Always report sudden vision changes promptly.

January 18, 2025
A MyLupusTeam Member

I'm not aware of any of your meds causing this issue, TR, and would tend to suspect it's due to lupus. If your rheumatologist is uncertain, have you seen a neurologist and had a brain MRI? You may want to consider a second opinion if you're having trouble finding answers.

Please also be cautious about the "as needed" prednisone, as it causes so many side effects and it's best avoided if possible.

January 21, 2025
A MyLupusTeam Member

HydrOXYchloroQUINE, prednisone as needed and started on 15mg weekly of methotrexate beginning of December. Also been on warfarin for 23 years after clots from the antiphospholipid in my 20s

January 19, 2025
A MyLupusTeam Member

TR, vasculitis, which lupus can cause, leads to this issue. What meds do they think may be the cause? That would be very unusual, I believe. I hope you improve soon!

January 19, 2025

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