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I’m on Benlysta weekly shots at home and have no issues. I wasn’t aware there were infusions also. You shouldn’t expose your skin to the sun while on Benlysta. Whenever I’m in the sun for even a few minutes, I get severely fatigued, bad brain fog, and break out in rashes. I love what it’s doing for my lupus.
Many people who have had Benlysta infusions report feeling tired or fatigued afterward. Some shared that infusions wiped them out, requiring rest for a day or more. Others experienced weakness and exhaustion for about a week. However, individual experiences vary, and some tolerate infusions better. Always discuss side Show Full Answer
Susie Nichols,
I am on Benlysta shots once a week and I too go through bad fatigue and cog- fog is the worst. I've never thought about one having anything to do with the other. I'll be watching for this. Thanks for the info 😊
I also know it is an immonosupresant drug, which is what ever. but I now work in the health office in the schools. My Doctor didn't seem to care much. I guess just be more vigilant about had washing?
I'm usually very tired after the infusion that day. I usually just go to bed and the next day start feeling better again.
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