Connect with others who understand.

  •   Learn from expert-reviewed resources
  •   Real advice from people who’ve been there
  •   People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I changed rheumatologist cause I really felt like I wasn’t getting anywhere with this doctor. I would go in and she would say where do you hurt and I would tell her and she would give me a shot and then heard me out like a cow to get the other 50 people in this doctor is at the University of Kentucky and they ever ran test and been so good

February 18, 2025
 · 
Reactions
A MyLupusTeam Member

@A MyLupusTeam Member that has been my experience right there, my Ana was 1:640 speckled and they tried to persuade me into thinking all sorts of things. Even when I had other leading symptoms, which were clear evidence of some systemic issue going on. My Pops and other family members died young and sudden and I could at least gather some answers to understand the circumstances of their early demise. @A MyLupusTeam Member Do you have any tell-tale symptoms which indicate a systemic disease such as lupus? Fatigue, brain fog, memory loss/impairment, joint pain, malar rash, lack of hunger and/or thirst? Any stomach pain? Headaches?

February 19, 2025
MyLupusTeam

It sounds like you're seeking advice on finding better lupus care. Switching rheumatologists can be a good step if you feel unheard. Building a long-term relationship with a doctor you trust is key. Look for a rheumatologist who listens, runs thorough tests, and discusses treatment options. You can ask local lupus support Show Full Answer

It sounds like you're seeking advice on finding better lupus care. Switching rheumatologists can be a good step if you feel unheard. Building a long-term relationship with a doctor you trust is key. Look for a rheumatologist who listens, runs thorough tests, and discusses treatment options. You can ask local lupus support groups or use resources like the Lupus Foundation of America or the American College of Rheumatology database to find a trusted provider.

February 18, 2025

Related Questions

View All
A MyLupusTeam Member asked a question 💭
Henderson, NC