Thank you very much for the response. I’m so glad to hear that the treatment worked for you. Yes, it’s helpful to learn about others experience with these things. I’m in a pickle because my dr cannot get the Ivig treatment that I need approved by Medicare. I’m going to see a specialist at Mayo that might be able to get things sorted out. In the meantime I’m in bed most of the time.

When I first stated having symptoms my doctor said it was MCTD.
I’ve had to change doctors several times because my husband was I the Navy and we moved a lot . One doctor would tell me I had SLE then the next would tell me I had MCTD.
The one thing that was consistent was
My treatment. I was being treated with azathioprine and plaquinel .
I didn’t care what they called my diagnosis, just as long as the treatment worked .
Thankfully, it does .