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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyLupusTeam Member asked a question 💭
Ruckersville, VA
March 24, 2025
 · 
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A MyLupusTeam Member

It's not common, Cynthia, but we are more prone to it due to steroids and lupus.

March 25, 2025
MyLupusTeam

Between 0.8% and 33% of people with lupus experience symptomatic avascular necrosis (AVN), a condition where bone tissue doesn't get enough blood flow, causing the bone to die. AVN primarily affects the hip joints and can be caused by either lupus inflammation or long-term corticosteroid use.

Common symptoms of AVN include Show Full Answer

Between 0.8% and 33% of people with lupus experience symptomatic avascular necrosis (AVN), a condition where bone tissue doesn't get enough blood flow, causing the bone to die. AVN primarily affects the hip joints and can be caused by either lupus inflammation or long-term corticosteroid use.

Common symptoms of AVN include joint pain during weight-bearing activities, joint stiffness, muscle spasms, and limited joint movement. Early detection is important - AVN can be treated with pain relievers and physical therapy in its early stages. However, more advanced cases may require surgery. If you're taking corticosteroids for lupus, it's important to discuss the risks with your healthcare provider and have regular evaluations to monitor bone health.

March 24, 2025
A MyLupusTeam Member

The few patients I've seen with it have done very well after total hip replacement, though for some people, the pain resolves without joint replacement.

I agree that's disrespectful.

March 27, 2025
A MyLupusTeam Member

A new Rheum. doc I just spoke to said it is common. I have it five areas & she again said yes this is common. I have never been on high doses of steroids. She rolled her eyes to someone else in the room, which I find disrespectful.

March 25, 2025

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