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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
March 29, 2025
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MyLupusTeam

Yes, difficulty swallowing (dysphagia) is actually quite common with lupus - affecting up to 13% of people with SLE. This happens because lupus can cause inflammation in the muscles of the esophagus, affecting how they contract and relax when you swallow.

Some common symptoms include taking longer to eat, feeling like food Show Full Answer

Yes, difficulty swallowing (dysphagia) is actually quite common with lupus - affecting up to 13% of people with SLE. This happens because lupus can cause inflammation in the muscles of the esophagus, affecting how they contract and relax when you swallow.

Some common symptoms include taking longer to eat, feeling like food is stuck in your throat, experiencing pain while swallowing, or having trouble getting food or liquids down. You might also notice coughing or gagging while trying to swallow. The good news is there are several ways to manage swallowing difficulties. Working with your healthcare provider to control lupus inflammation is key. They may also recommend adjusting your food textures, changing your posture while eating, or working with a speech-language pathologist who can teach you specific swallowing techniques.

Since swallowing problems can lead to complications like choking or malnutrition, it's important to discuss these symptoms with your doctor to develop an appropriate management plan.

March 29, 2025
A MyLupusTeam Member

Speech/language therapists also work with swallowing difficulties and provide exercises to help with some swallowing issues, Nancy, so I think @A MyLupusTeam Member has a good idea. It's important to see your doctor about it first to have it evaluated, and they can refer you for the therapy.

March 29, 2025
A MyLupusTeam Member

I have had this problem which there is a restrictions in my esophagus and I have to have my esophagus dilated quarterly. In December I had this done with botox Injections 4 the first time.

March 29, 2025
A MyLupusTeam Member

I can talk. It's just swallowing. At times my voice will go horse but not for long. I just mentioned it to my neurologist and he didn't say much about. There is a place on tongue when food wants to go down my throat without me being ready to swallow. That's a little scary. Then at times water will go down very slowly and I will experience a little discomfort. Do you have this as well?

March 29, 2025
A MyLupusTeam Member

Yes, I unfortunately do. It takes ages for me to eat. I have muscle involvement with lupus and had TIAs and strokes in the past, so I chalk it up to having those conditions. Have you talked to your rheumatologist or neurologist about this bothersome symptom yet? What did he/she say? Consulting a speech-language pathologist sounds like a good idea💜

March 29, 2025

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