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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyLupusTeam Member asked a question 💭
Pittsburgh, PA
April 22, 2025
 · 
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A MyLupusTeam Member

Yes I've been on benlysta for nearly 2 years now after coming off hydrochloride for 32yrs which caused a hole at the back of my right eye. I must say it was the best thing I have ever done and you don't need a port you just swap sides every week. And I feel fantastic on it and it keeps my pain under control I feel like a new women at 66yrs people ask have they cured lupus we know there is no cured. I would recommend anybody to give it a try 100%.

April 25, 2025
A MyLupusTeam Member

Great questions @A MyLupusTeam Member. Yes, Benlysta is expensive. The pharmaceutical company has a program for financial assistance called Benlysta Cares. The auto-injection is a pre-filled needle you use once a week. I don't think that you need a port for the infusions. Someone else can answer that question for you. Google Benlysta GSK. The manufacturer has in-depth information for lupus patients.

April 25, 2025 (edited)
A MyLupusTeam Member

3yrs & I LOVE IT!

April 22, 2025
MyLupusTeam

Yes, many people with lupus take Benlysta (belimumab), which is available as both infusions and self-administered injections. It was the first FDA-approved medication specifically for treating systemic lupus and lupus nephritis. MyLupusTeam members have shared varied experiences with both forms. Some report that infusions Show Full Answer

Yes, many people with lupus take Benlysta (belimumab), which is available as both infusions and self-administered injections. It was the first FDA-approved medication specifically for treating systemic lupus and lupus nephritis. MyLupusTeam members have shared varied experiences with both forms. Some report that infusions can cause fatigue for a few days but are only needed monthly after initial treatment. Others who switched to weekly injections note they may have less intense but more frequent side effects. Some members have seen positive changes in their skin and joints with injections, while others noticed better results with infusions.

The choice between infusion or injection often depends on your lifestyle and preferences - infusions require clinic visits but are less frequent, while injections can be done at home but needed more often. It's important to discuss both options with your healthcare provider to determine which method might work best for you.

April 22, 2025
A MyLupusTeam Member

Wow! Thanks for the info! Very encouraging and very helpful thank you!

April 25, 2025

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