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A MyLupusTeam Member asked a question 💭
Wesley Chapel, FL
June 18, 2025
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MyLupusTeam

What are some ways to manage constipation with lupus?

Several factors can contribute to constipation in lupus patients, including medications like hydroxychloroquine and nervous system changes from lupus itself. Some people with lupus may also experience IBS symptoms that affect regularity.

Here are some lifestyle approaches Show Full Answer

What are some ways to manage constipation with lupus?

Several factors can contribute to constipation in lupus patients, including medications like hydroxychloroquine and nervous system changes from lupus itself. Some people with lupus may also experience IBS symptoms that affect regularity.

Here are some lifestyle approaches to help manage constipation:
- Maintain a balanced diet rich in fruits and vegetables
- Stay physically active as your condition allows
- Practice stress-reducing activities like yoga or meditation
- Ensure adequate water intake Some MyLupusTeam members have found relief through:
- Taking polyethylene glycol (MiraLax)
- Drinking blended juice made from cucumber, pineapple, and fresh ginger
- Using heating pads for associated discomfort
- Incorporating more berries into their diet

If lifestyle changes don't provide enough relief, it's important to discuss the issue with your doctor, as they may need to adjust your medications or recommend specific treatments. They can also evaluate if any of your current lupus medications might be contributing to the problem.

June 18, 2025
A MyLupusTeam Member

Haha yes total pain in the butt!! my gastro switched me from miralax to senna liquid I recommend chocolate flavor. Little goes a long way with this👍🏽

June 18, 2025
A MyLupusTeam Member

Yes, I have major issues with my digestive system and constipation. I have tried Miralax, Colace and Linzess without improvement. In fact, in the case of added fiber, I believe it was worse. This has been an ongoing (miserable) issue for more than 20 years. I had surgery to remove 1/4 of my large intestine in 1998. The intestine had been twisting causing a blockage and much pain. Unfortunately, when I had the (many) tests, my intestines were empty and doctors could not figure out what caused the pain. They diagnosed me with GERD. Finally, the pain became unbearable when the intestine did not untwist itself. Emergency surgery was performed which is when they saw the damage to my intestines. They removed the damage intestine. I was o.k. for about a year. I had multiple laparoscopic surgeries to remove adhesions. I continued to have ongoing issues. A little over a year ago, we tried another surgery, A modified gastric bypass. The stomach was reduced (to reduce the gastric juices in the esophogus). My esophagus has limited motility which extends through my digestive system. There had been some evidence of some success for persons with sclerosis in the digestive track. Long story short, I finally re covered from the surgery. Unfortunately, I am still plagued with the same (or worse) issues. I believe the problems are caused by inflammation in the digestive tract. The only thing that helps is prednisone. I currently take a tapering dose of prednisone every other week. On the week that I am not taking prednisone, I have to take enemas to have a bowel movement. My Rheumatologist will not give me prednisone (even though it is the only thing that works!), so I had to order it from India. I decided to self prescribe because I am too old (68 years old) to continue having theses ongoing issues without relief. It is more expensive than if I had a prescription, but it is what it is... I am sorry you are suffering and pray you will figure out what works for you. Sending hugs.....

September 11, 2025
A MyLupusTeam Member
June 19, 2025
A MyLupusTeam Member

I have major problems with constipation! I have to take 3 capfulls of miralax every night so I can have a bowel movement in the am. I hope my new Gastrologist has something new that will work better than the miralax. It's literally a pain in the butt!...lol

June 18, 2025

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